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Rare Disease Day 1

Series
2022 Health Trends

Opening Remarks 

Tara Britt, Founder and President, Rare Disease Innovations Institute (RDII)

Dr. Raymond A. Huml, VP, Head Rare Disease Consortium, Syneos Health and Editor & Author, Rare Disease Drug Development: Clinical, Scientific, Patient and Caregiver Perspectives, from Springer Publishing

A Patient and Patient-Advocate Perspective

Meredith L. Huml, Chapter Director, North Carolina Chapter of the FSHD Society

Keynote: Physician Overview of Mental Health in the Rare Disease Community

Dr. Michelle Bailey, Senior Medical Director, Syneos Health

Keynote: Psychological Overview of Mental Health in the Rare Disease Community 

Dr. Kathleen Bogart, Associate Professor of Psychology, Oregon State University

Panel Session: Mental Health and Age of Onset/Diagnosis in Rare Disease 

Moderators: 
Dr. Kathleen Bogart, Associate Professor of Psychology, Oregon State University

Keri McDonough, Head of the Patient Voice Consortium, Syneos Health

Patient Panelists:
Kate Bardwell​, Principal, SSU Legal Contract Management Global Site Contracts Service Centre, Syneos Health

Meredith L. Huml​, Chapter Director for the North Carolina Chapter of the FSHD Society

Dr. Chloe Labetoulle, Regulatory Affairs - CMC Global Regulatory Affairs Solutions (GRAS), Syneos Health

Hawken Miller, Features Writer and Columnist, BioNews

Kevin Schaefer​, Associate Director of Community Content, BioNews Inc

Jessica Valence, VP Team Operations, GRYT Health

Closing Remarks 

Tara Britt, Founder and President, Rare Disease Innovations Institute (RDII)

Dr. Raymond A. Huml, VP, Head Rare Disease Consortium, Syneos Health and Editor & Author, Rare Disease Drug Development: Clinical, Scientific, Patient and Caregiver Perspectives, from Springer Publishing

Interested in Syneos Health?